respawn Lupus changed things

[InnerFire]

Hi --

 

Still trying to figure out a way to stick with this, but at least this time I did the workout first before logging on. I was diagnosed with lupus in February, and everyone seems to realize that it was there for quite a while but no one put the pieces together until the blood test turned positive. 

 

What sent me back to NFA this time was being put on a toxic med to manage pain, and my pain being treated but the side effects being horrific. What's left?  My old standbys of diet and exercise, but what can I do without causing flares or injuring myself more?  Really, what does a seriously introverted "word nerd" and science junkie MBA student do about exercise?  I'm no athlete! 

 

I seem to find something different every time I come to the NFA website. Including Steve's brotherly emails with stories occasionally (gently nagging  :D). Then I remembered Staci, and learned about her battle with Hashimoto's ...... not sure of the outcome, but I thought if she came from her background, maybe I can also. No cure for lupus, but I am starting from my own ground zero here. 

 

I have nothing to lose from going at this, except more toxic drugs and potential organ failure from those drugs. 

 

I figure I can only go up. 

 

So I did one circuit of the Beginner Body Weight Workout (my exhaustion is that bad, yes -- plus anemia from the med and lupus) -- I did one complete circuit, slightly modified. 

 

My diet is already 95% clean, but I can still improve it.  I just wish I could sleep!!  Yawning my head off as I write this. 

 

My goals .....

Stay awake and *alert* at least 14 hours a day.

Regain strength and energy to manage normal activities of daily living.

Go shopping, run errands, family outings without severe fatigue.

Lose at least 30 pounds of fat (I don't know how much I weigh right now, but it's not normal for me).

Regain lost muscle from pain and lost range of motion, immune system attacks. 

Have the strength and energy to build and maintain a regular, lifelong fitness habit.

[Harleytrypp]

InnerFire, 

 

Sorry to hear about your diagnosis.... Lupus is no picnic.   Good luck with all of your efforts, take small steps.

 

[Trixie Falsae]

I really commend you for pushing through such a tough diagnosis! Have you spoken to your doctor about your goals? They may have some recommendations.  Be gentle with yourself while you figure this out.  List to your body and go easy and rest if you need it.  Research what foods can trigger a flare so you can avoid them. I have a list of food I can't eat,  and a bunch more I eliminated because I noticed a reaction even if testing didn't officially take it off the table for me. Blessings to you on this journey!