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Late Start, But Here


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It's a bit of a late start, but I'm here. I participated a few years back, but life got in the way and I stopped. I got sick. Thought I was getting better. Wasn't. Now I'm even worse off.


Long story short: I suffer from iron deficient anemia. Last year I had to get IV iron to try to get me to reasonable levels. Turns out I'm allergic to IV iron. However, before the allergy showed itself we did manages to get enough iron into my system to put me at the lowest part of normal. Even with the iron in my system the side effects of low iron remained, depression, constant exhaustion, memory loss, etc. About 3 weeks ago my doctor determined that once again my iron levels were too low and that I needed to go back on IV iron, but a different type (there are three kinds). Thursday before last I had my first treatment. It went okay. I was still exhausted and depressed, but I didn't constantly feel like shit. So an improvement.


Last Thursday I went for round two. We had a few issues. I got overheated as in my skin felt normal to the touch, but I felt as if I were suffering from a really bad sunburn and couldn't cool off. The doctor there determined it was likely a reaction to the steroid. She said that it's a common side effect. That night however, things got bad. Even though all I was doing was watching tv my blood pressure shot up to 167/85 and my pulse was at 140 beats per minute. I went to the ER. The doctor there wasn't particularly helpful. He ran a blood test. I sat for an hour waiting for the results. He gave me a xanax. I sat for two hours waiting for results. He gave me tylenol, told me he couldn't find anything wrong and as my blood pressure was at 145/84 with a pulse of 108 bpm he sent me home with instructions to see my doctor.


All weekend my blood pressure and pulse was high. I have an appointment with my GP today to see what she can do. I didn't do anything all weekend and yet my heart was constantly pounding. It literally hurts from all the beating. I started planning out my will just in case. That was my wake up call. If I don't do something now I'm going to be dead soon. So hear I am. My goal for now is simple. Eat healthy. Stay calm so my heart doesn't burst out my chest. I'm already on blood pressure meds, but I suspect my doctor will up them at the appointment today. I don't know what else she will do. Hopefully she can find something that will help.


My goals:

1. Eat healthier - no soda (I don't need the caffeine) and limit the junk food.

2. Food log - make a post about what I eat. Write it all down. Even the junk food. I know it's not something I can give up cold turkey as I comfort eat. All weekend I've wanted to do nothing but binge on junk food. I've managed to keep it down to one soda a day and a couple of cookies instead of 3 or 4 sodas and the whole pack of cookies. As we don't have any more soda it should no longer be an issue.

3. Relax - try not to do things that are stressful until my heart is better. Which means I can't really do much cleaning/grocery shopping/etc. And when I do these things I have to make myself rest afterwards instead of trying to push on to the next thing. Even more difficult though is mental stress. My depression makes me sad and I start to cry. This makes me upset which makes my heart beat faster. Which makes me sad and stresses me out. And so the cycle continues.


Long Term Goal: Iron. Get my iron up to normal person levels. I have 6 more treatments scheduled. Hopefully they all go well with no more side effects.

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Current Challenge: Late start, but here at last.

Level 6 Magikarp

Past Challenges: 1 2 3 4 5

My NF Character and Epic Quest!


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Yesterday was rough.

Food log:

Breakfast: oatmeal, banana, and mixed nuts, with water to drink.

Lunch: I had just gotten out of a rough dr appointment and caved in to fast food. I had Raisin Caines. Three chicken tenders, fries, bread, two sauces, and lemonade.

Snack: chocolate caramel candy bar. Again, stress got too me.

Dinner: I made homemade chicken soup with carrots, leeks, green onions, and celery. Water to drink. It tasted great, but two hours later I was hungry again.

Snack: two hotdogs and 15 green olives.


As I said it was a rough day. I saw my doctor about my heart problems. She believes it was caused by the iron and I reacted poorly to the first type of iron I got last year. She put me on two new medications to help with my blood pressure and pulse. She sent a message to my hematologist and it was determined that my iron treatment will be put on hold. In six weeks they will check my iron levels and decide to try it again or just leave me as is. I'm upset as I need the iron. Without it my red blood cells aren't being produced properly which leaves me constantly exhausted as red blood cells transport oxygen though the body. This means my brain (and everything else) isn't getting oxygen and can't work correctly. I've already been suffering from depression, memory loss, and general confusion. I often find myself talking an I can't remember the words or ideas of what I'm saying. Also, as I'm constantly exhausted I find myself too tired to do any exercise at all. Which makes me more depressed. Add in that I've gained 15 pounds during quarantine on top of the ton I already need to deal with and my mind keeps spiraling downward. 


On the plus side though I did get my endoscopy and colonoscopy scheduled. Hopefully we can find out how I'm losing all the iron. Other good news is that we finally get our kids again June 6th. Their mother has been trying to keep them from us and making excuses. We finally had to threaten to file her in contempt of court as she was supposed to meet us last weekend. We are losing two weeks of the little time we get with them and it sucks. I miss them.




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Current Challenge: Late start, but here at last.

Level 6 Magikarp

Past Challenges: 1 2 3 4 5

My NF Character and Epic Quest!


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I went back to work yesterday for the first time in a week or so. I actually felt good in the morning. Around noon my energy started falling and I ended up leaving at 1:30. Luckily I have an understanding boss. Today I dont have to arrive until 10 and the goal is to stay until 6. Hopefully each day is a little better than the last and Im back to a full shift next week. I'm really lucky to have all the sick time I have. Before all this iron stuff started happening I was almost never sick. One day I hope to be back to that.


Yesterday was okay on my food.

Breakfast: banana black berry smoothie 

Snack: grapes

Lunch: left over chicken veggie soup.

Snack: one chocolate icecream bar. Usually I eat two at a time, so I'm happy I stuck with one.  I also managed to turn down icecream after dinner when my husband offered me one.

Dinner: steak, backed potatoe with cheese and a salad. 


My blood pressure is getting a bit better, but my pulse is still too high. I'm tracking them each day for my doctor.






  • Like 1

Current Challenge: Late start, but here at last.

Level 6 Magikarp

Past Challenges: 1 2 3 4 5

My NF Character and Epic Quest!


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