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Unikarm

Unikarm Tames her Gutsy issues

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so are you ladies saying i could have celiac disease (or intolerances) even though my blood test (sent to a lab) tested fine? no one in my family has celiac that i know of but we all have stomach issues.

 

Yes.

 

I am suspicious of the accuracy of these unspecified blood tests you have had done, but more to the point, I don't think they're the kind that test for intolerances/sensitivities. I have personally gone through very thorough testing for coeliac disease, and it *starts* with a blood test, but that's not 100% accurate, then you have an endoscopy and a biopsy done, if you want further investigation, and a 1 month minimum exclusion diet, then reintroduction of your suspect food.

 

I see a professional pediatric allergenist for my son's allergies, as well as constantly chatting with other mums of kids with allergies, and I simply do not believe that a sample of blood sent off for testing will give you 100% reliability of results; skin prick tests are more accurate for allergies (but I don't think you have an *allergy* anyway). Testing for allergies and intolerances is more complex than that. I worry about the competency of the specialist you saw, if they told you it would give you guaranteed accurate results for a diagnosis of what's wrong with your gut?

 

I strongly recommend you put yourself on a *very strict* exclusion diet (no dairy/gluten) for 1 month minimum, keeping a journal of symptoms, then trialling reintroducing your suspected allergens.

 

It might be that you *don't* have an allergy or food intolerance of any kind. In which case, the exclusion diet, with continued presence of symptoms, will help establish that (at least for two common candidates), and you can move on to further investigation from there.

 

FWIW, my best guess is that I suspect that you might have had a suite of RAST blood tests done. Does that sound familiar? You mentioned your results were <0.35, and that's in line with the RAST result range (lowest category, for no allergies suspected). They are checking for *allergies*, for increased IgE. This RAST test for wheat allergy is *not* the same as the blood test for anti-gliadin antibodies (IgG, IgA) (testing for gluten sensitivity). RAST tests will be great (but not 100% reliable, my allergenist prefers skin prick tests, which are also not 100% reliable) for determining if you have an allergy/anaphylaxsis, but will NOT tell you if you have a food *sensitivity or intolerance*.

 

Have a look at your test results for gluten/wheat tests in particular. See if they looked at levels of IgE (standard for RAST tests), or IgG and IgA (for gluten sensitivity testing). In any case, since you cut down heaps on gluten this challenge, test results may have been increasingly inccurate, as you've got to keep gluten in your diet while doing testing for anti-gliadin antibodies, if you want more accurate results. They should still be *fairly* good though - you've been eating gluten within the past 6 months.

 

Go see your GP about an anti-gliadin IgG/IgA blood test for gluten sensitivity, and lactose tolerance testing. A DIY version for lactose tolerance testing is to compare the results of drinking regular milk, with drinking lactose free milk. (On different days, of course.) See what symptoms develop within 4 hours of drinking 2 glasses of milk.

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There are a tonne of websites that have really nice paleo recipes - http://paleomg.com/bacon-and-spinach-stuffed-chicken/ is a good place to start. http://www.theclothesmakethegirl.com/category/recipes/ has some nice ones. too

google paleo recipe and the ingredient you want to cook with and you'll find a tonne of stuff to cook.\

By the way. I LOVE the fact that you recommended 2 of my favorite blogs to go too!! you're awsome!!

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Yes.

 

I am suspicious of the accuracy of these unspecified blood tests you have had done, but more to the point, I don't think they're the kind that test for intolerances/sensitivities. I have personally gone through very thorough testing for coeliac disease, and it *starts* with a blood test, but that's not 100% accurate, then you have an endoscopy and a biopsy done, if you want further investigation, and a 1 month minimum exclusion diet, then reintroduction of your suspect food.

 

I see a professional pediatric allergenist for my son's allergies, as well as constantly chatting with other mums of kids with allergies, and I simply do not believe that a sample of blood sent off for testing will give you 100% reliability of results; skin prick tests are more accurate for allergies (but I don't think you have an *allergy* anyway). Testing for allergies and intolerances is more complex than that. I worry about the competency of the specialist you saw, if they told you it would give you guaranteed accurate results for a diagnosis of what's wrong with your gut?

 

I strongly recommend you put yourself on a *very strict* exclusion diet (no dairy/gluten) for 1 month minimum, keeping a journal of symptoms, then trialling reintroducing your suspected allergens.

 

It might be that you *don't* have an allergy or food intolerance of any kind. In which case, the exclusion diet, with continued presence of symptoms, will help establish that (at least for two common candidates), and you can move on to further investigation from there.

 

FWIW, my best guess is that I suspect that you might have had a suite of RAST blood tests done. Does that sound familiar? You mentioned your results were <0.35, and that's in line with the RAST result range (lowest category, for no allergies suspected). They are checking for *allergies*, for increased IgE. This RAST test for wheat allergy is *not* the same as the blood test for anti-gliadin antibodies (IgG, IgA) (testing for gluten sensitivity). RAST tests will be great (but not 100% reliable, my allergenist prefers skin prick tests, which are also not 100% reliable) for determining if you have an allergy/anaphylaxsis, but will NOT tell you if you have a food *sensitivity or intolerance*.

 

Have a look at your test results for gluten/wheat tests in particular. See if they looked at levels of IgE (standard for RAST tests), or IgG and IgA (for gluten sensitivity testing). In any case, since you cut down heaps on gluten this challenge, test results may have been increasingly inccurate, as you've got to keep gluten in your diet while doing testing for anti-gliadin antibodies, if you want more accurate results. They should still be *fairly* good though - you've been eating gluten within the past 6 months.

 

Go see your GP about an anti-gliadin IgG/IgA blood test for gluten sensitivity, and lactose tolerance testing. A DIY version for lactose tolerance testing is to compare the results of drinking regular milk, with drinking lactose free milk. (On different days, of course.) See what symptoms develop within 4 hours of drinking 2 glasses of milk.

can this kind of....stuff, i guess (maybe celiac). progress over time? because when i was a kid i could eat bread like crazy and i felt fine. in highschool sort of. i could eat anything and then go to the bathroom (poop) literally right after. now eating certain things cramps me up and it's hard to me to go. also all the ladies in my family have had their gallbladder taken out...so mom thinks it's my gallbladder.

my doctor was just a family practice docotor not a gastrointrologist or something. didn't have good insurance then so i took what i could have and that was a simple blood test. :( when i get better insurance i'll go through all that horrible testing (even though i don't want too..). but most of it sounds like i can figure it out on my own with diet.

ha i should do the whole 30!

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i'm having a tough time thinking it's celiac. one of of new friends (met a few months ago) has celiac. and when she even touches flour she start itching like crazy and get a rash. i don't do that. i even rubbed flour up and down my arm and nothing happend...not even an itch.

but even she says everyone is different. i hope it's not celiac. finace will not be supportive of it. he likes his bread and bakes goods. (it's the half british in him)

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Hey,

I'm glad that you are at the edge of figuring it out!

Yes you might be zeliac. Actually I don't believe zeliac really exists, because all people are not designed for grains. They just don't get sick... For example I just get acne and a little wind from gluten. And I feel crappy and tired but of course this can't be due to nutrition, right? !attention irony in the last sentence ! ;)

Please give paleo three weeks. Your husband can bake for himself and afterwards you can decide what to do. I will eat the stuff my girlfriend bakes and ban wheat the rest of the time...

How did the rest of the challenge go for you? Please feel free to post a summary in our report thread!

Good luck on your further journey!

I hope you stay with us for the next challenge and I am pretty excited to see what you figure out.

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Yes, coeliac disease/gluten intolerance can get worse over time. It did for my mum, for example. (She used to be fine with a little bread, and OK with oats, but can't have oats now or even a tiny crumb of wheat bread.) As the villi get more damaged, your body copes worse with gluten. Some people who are gluten intolerant can also develop lactose intolerance over time; I've heard this can be a bit of a trend.

 

And your fiance doesn't have to give up gluten because you are. Don't let his choices limit yours.

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Actually I don't believe zeliac really exists, because all people are not designed for grains. They just don't get sick... For example I just get acne and a little wind from gluten. And I feel crappy and tired but of course this can't be due to nutrition, right? !attention irony in the last sentence ! ;).

This this this! Please before you do anything crazy like remove your gallbladder, consider that the first medicine is always food! Your body has more bacteria in it than cells of its own, and is balanced by hormones, enzymes, yeast and a bunch of other things that can easily get out of balance if you don't fuel it right, creating all kinds of issues. I know you're a hypochondriac so you feel you have to have a name for it, so I would just say you have celiac.

If you need more convincing, read this.

http://www.fourhourworkweek.com/blog/2010/09/19/paleo-diet-solution/

The blog is titled "how to keep feces out of your blood stream (or lose 10 pounds in 14 days)."

Yes it is that gross and you will never want to eat pizza again.

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Hey,

I'm glad that you are at the edge of figuring it out!

Yes you might be zeliac. Actually I don't believe zeliac really exists, because all people are not designed for grains. They just don't get sick... For example I just get acne and a little wind from gluten. And I feel crappy and tired but of course this can't be due to nutrition, right? !attention irony in the last sentence ! ;)

Please give paleo three weeks. Your husband can bake for himself and afterwards you can decide what to do. I will eat the stuff my girlfriend bakes and ban wheat the rest of the time...

How did the rest of the challenge go for you? Please feel free to post a summary in our report thread!

Good luck on your further journey!

I hope you stay with us for the next challenge and I am pretty excited to see what you figure out.

report thread? where?

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