alienjenn - overcoming

[alienjenn]

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[alienjenn]

I had Monday respawn day. Just got posters done and up

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[alienjenn]

Copied this from my Facebook tonight

Caution: word vomiting ahead

I'm talking things out ( please share if you think someone might have answers for me. My email is jrf4663 @gmail.com. I want to crowd source this and figure out what is wrong with me. Please let this get viral so I can figure this out)

Just logged in to my weight lifting tracking app

Last time I logged a workout? 26 Aug 2015.

Sigh. I've done yoga and walking and hiking. But nothing regular and nothing intense. (I'm talking less than once a week. Before my knee injury I averaged 5 times a week with SOME kind if exercise)

Now the question, is the intense flair of pain and fatigue ( that became a noticeably INTENSE flair like around Dec but as generally increasing from Aug) because of the not lifting? I've had access to dumb bells. I COULD lift. But I haven't.

The reason I'm confused is that in April I hurt my knee (split it to the bone popped the joint socket. Required arthroscopic repair and I&d and closure) And was out for twelve weeks. I lifted twice in June. 4 times in July. And 4 in August.

I need to check other logs to see My running and hiking walking and yoga. I was RELEASED from all restrictions 1 July. I know I was hiking and it wasn't terrible.

With this flair I've developed four new spots that hurt. My right palm, right foot near the toes (right where it was broken in 2012) both heels ( it feels like I'm walking on my leg bones) along With those new spots it's my right hip my lower back My fingers left shoulder blade right front of shoulder and right side of neck (posting every spot in case you see a pattern that I don't) the chronic pain has been fairly steady for nineteen years or so. But it's kicked up ( I'd say I pretty much live at 6/10 pain. A good day I'm a six. On a bad day it can be a general eight or nine) and I've got new spots.

I'm also more stiff recently. It's hard to tell because I'm hyper mobile. So I'm pretty much normal flexible. But for me I'm stiff

My pain was decreased when I was lifting.

Things got better with my knee and I was pretty much at normal pain levels. The fatigue however I can't pinpoint exactly. I don't know if that was intense while I was out? Or if that didn't super flair until the pain did. And the pain wasn't an all of a sudden flair it was a general increase until I noticed it was intensely more than usual.

I guess I'm wondering if I should just say to hell with it and fight through this or if that will make things worse. ( obviously none of you are doctors or MY doctor I'm just acting for opinions)

I got a shot of cortisone in my knee when I was in Virginia. It helped for about a week then it was worse and worse again. Nothing shows on xray next diagnostic step is mri.

I sleep with a heating pad every night. I can't move in the mornings. I hobble and cry until the meds kick in. I can't get comfortable to sleep so I don't sleep well ( so am I fatigued because of pain or is two separate things?) I'm irritable. I've noticed a distinct decline in mental function (I used to be able do calculus in my head now I have to use a calculator because I'm not sure about it). I've been suffering from anxiety. I feel like I'm thinking in maple syrup.

I've been to endocrine ( yes I've got thyroid issues no I don't need treatment YET negative on hoshimotos)

I've been to rheumatologist ( I don't have RA, I've got the beginning of osteoarthritis but nothing that should cause THIS amount of pain. I have hyper mobility. But she doesn't think that is why my pain)

I've been to a spine doc (tight hips fixed those in pt for the knee)

I have alpha one antitrypsin deficiency (I received replacement therapy in high school nothing since. I'm lung affected. Last pft I had >90% lung function. I'm not noticing any changes in breathing. Spot checks of o2 sats are always >95%)

Then there's the Lyme thing. Ezra (my dog) was positive for Lyme. Which means I've been in Lyme invested forests. But I'm technically negative ( according to my doc).

I suffer from depression. I have for years. I've recently started ( within the last year) on cymbalta. My emotions are better than ever. I don't think that this pain and fatigue is related to depression. Although I'm feeling situational depression because I can't the things I love because of pain and fatigue.

I also take meloxicam. It's an anti inflammatory med. I can't move without it.

They've also said it's because I'm overweight. Losing a hundred pounds didn't help my pain. I have gained since knee injury. Looking at my logs I gained about 35 by July and now I'm up another 20. I'm still down 45 from my heaviest.

I'm diabetic. My a1c asset diagnosis was 14 and change. It's currently 6.1. I don't think this is from diabetes.

I'm gluten intolerant. I've cut all gluten from my diet and chronic gut issues have gone ( accidentally exposing myself to gluten results in massive diarrhea, so I'm fairly certain I can call it intolerance)

I've got allergies, but they haven't been bad actually. I've quit taking daily antihistamines because my sinuses got so dry I was having nosebleeds.

I don't know who to see next. I don't know what questions to ask. I've exhausted the extent of my knowledge. I just know I'm tired of feeling like this. I'm tired of missing life.

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[ladylydia]

What stuck out to me the most from this was that your pain was less when you were lifting; so start lifting again.  Beyond that, I don't know; what would yo tell a patient who presented with the same or similar issues? 

[alienjenn]

I'd tell them let me talk to your doctor?

In icu we deal with more acute issues than chronic. Is why I'm at the limit of my knowledge

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[SevenofSeven]

The only thing I can put in here checking for food intolerance to salicylate/acids.

 

http://atpscience.com/salicylate-foods-sensitivity-intolerances-and-food-list/

 

My own Lads need boring foods because too much of a good thing can be bad, I know, how can good be bad. The article is just a blog piece but it may help.

 

A woman here in Australia "Sue Dengate" wrote some pretty useful books on food intolerance, I can say her method worked for me and the Lads, when we were looking down the medication barrel. Her theory was pretty much food was big factor in kids with problems and adults too.

 

http://fedup.com.au

 

Good luck, what you are going through really does suck and I hope you can find some answers soon.

 

 

[Elastigirl]

Sorry. Are you gluten intolerant or celiac? I have a friend who is celiac, and can't have any cross contamination or he will get sick. So, if something is cooked where they have flour, and he gets even a little he gets sick. Which means even if you cut out gluten, you could still have problems. 

[alienjenn]

I talked to a gi doc about celiac. He said to test for celiac I need to be on gluten. I'm like hell to the no.

I've considered the salicylate intolerance. I'm allergic to aspirin and apparently it's similar.

I think after this whole thirty ish I'm doing I'm going to do something much more strict

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[alienjenn]

Went to the gym yesterday

Feel like I'm dying today

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[Elastigirl]

On 8/9/2016 at 6:30 AM, alienjenn said:

I talked to a gi doc about celiac. He said to test for celiac I need to be on gluten. I'm like hell to the no.

I've considered the salicylate intolerance. I'm allergic to aspirin and apparently it's similar.

I think after this whole thirty ish I'm doing I'm going to do something much more strict

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Yeah, that's why I haven't been tested either. I don't think I'm actually celiac, though a few things may point to it

[SevenofSeven]

Hope you are feeling better today.

[alienjenn]

Just walked for a couple hours. I feel less like death and more like debilitating illness [emoji14]

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[alienjenn]

 

 

 

I grew this!

 

 

 

 

 

 

This is my traveling garden

 

 

 

 

 

 

 

 

 

I don't remember if I posted my respawn goal board. I needed something I could easily break down and transport

this will break down and fit in a folder in my backpack that I keep in the car... I think that will help with the motivation durring travel and whatnot... 

 

 

 

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[alienjenn]

Sorry for repeats in pictures it's hard because my phone lists them as a bunch of numbers [emoji14]

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[alienjenn]

Posted in the respawn forum

I got this. I'm a hero.

Yeah. Ummm. I don't feel heroic but that's ok because what you speak about you being about

1. "Am" routine - yup ✔

2. "PM" routine - no - tired after work have to deal with the kid about not getting stuff done 👎

3. Food - track (youfood) - whole 30 ish - yup - ate my dinner when I got home like a good girl. Tracked it ALL. Pretty much whole thirty. ✔

4. Exercise - step goal OR 10 minutes - work. Step goal. ✔

5. WATER - "6" cups (I got the big cups) ✔ ✔ filled my 24 ounce cup three times. My contigo (I THINK 18 ounces?) once. My 32 ounce thermos once. ( my guess makes that 122 ounces) ✔

6. Post in my battle log every day ✔

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[alienjenn]

This week wasn't as good as last. I'm having a hard time getting boy to get his school done and I'm having to deal with that when I'm off. That makes exercise difficult.

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[alienjenn]

This is where I spent my night. I don't feel well

1. "Am" routine 👎

2. "PM" routine somewhat I did clean for ten min and meds so i guess that fits the literal requirement

3. Food - track (youfood) - whole 30 ish ✔

4. Exercise - step goal OR 10 minutes 👎 👎 👎 stayed in bed all night and I'm about to sleep again. I work tonight

5. WATER - "6" cups (I got the big cups) eh big bowl of watermelon and two owl cups (16 ounces each) and One green cup (12 ounces?) of water so 48 ounces plus watermelon not much and probably why my head hurts

6. Post in my battle log every day ✔

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[Elastigirl]

Sorry you don't feel well. Looks like you hit most of your goals anyway. And even if this week didn't go as well,you still have lots of pretty stickers.

[alienjenn]

Sorry you don't feel well. Looks like you hit most of your goals anyway. And even if this week didn't go as well,you still have lots of pretty stickers.

I do have lots of stickers. Not as many as I want but yes a lot

And today

1. "Am" routine ✔

2. "PM" routine ✔

3. Food - track (youfood) - whole 30 ish hmm.... Didn't stay whole thirty ish. In fact I went to the store hungry and let my emotions and hunger get the best of me. But I tracked so I'm giving myself credit ✔

4. Exercise - step goal OR 10 minutes steps ✔

5. WATER - "6" cups (I got the big cups) ok, one thermos, three woman cup, two pink cups... 32, 24, 12... 128 ish ✔

6. Post in my battle log every day ✔

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[alienjenn]

Excited

Second time this month I've exceeded my step goal. I had dropped it because I was having such a hard time.

I'm needing consistency

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[alienjenn]

New goal

Finish this race in 17 days (by 10 sept)

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[alienjenn]

When I talk about thermos, contigo and owl cup this is what I mean

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[karinajean]

This is an awesome resplendent darling. ❤️

Sent from my iPhone while riding a unicorn through the cosmos.

[karinajean]

Ha, supposed to read RESPAWN DARLING. but it works both ways!

Sent from my iPhone while riding a unicorn through the cosmos.

[alienjenn]

I didn't post this morning before bed. It's ok.

I'll take this

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