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jrosto

Jrosto - A Barbarian Pulls His Own Weight

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Glad you are back ElemHH,  I still use that image you shared with me as a major motivation :)

 

Good to be back, I didn't stay on top of things while I wasn't here keeping myself accountable. I'm glad to hear you've gotten some use out of something I've posted.

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Week 1 - Day 1. The Beginning


 


1.  Pull my own Weight:


 


I ordered a set of Rogue Fitness Pull Up Assistance bands.  When they arrive I'll figure test out my max set with the heavies band then use a "Grease the Groove" approach to using the bands to program the movement.  I'll also be Scapular Pulls to a Hollow Body dead hang and reverse pull ups 3 days/week. 


 


2.  Keep Calm and Carry On: An Assassin must be able to control his thoughts and breath. 


 


7.9 minutes of Seven Second Box Breathing.


 


3.  Learn a New Skill:


 


0/3  


 


4.  A Barbarian’s Got to do What a Barbarian’s Got to do:


 


Prying Goblet Squat - One set of 5 with a 16 kg kettlebell.


 


Hip Bridges- One set of 5 Three Second Hip Bridges


 


Halo - One set of 5, in each direction, with a 16 kg kettlebell.


 


Kettlebell Swings - Four sets of 10, one handed, each hand, with a 20 kg kettlebell. and one set of 10, one handed, each hand, with a 24 kg kettlebell.  Today I've officially started my progression to the heavier KB :)  My sessions are 20 - 24 - 20 -20 - 20 kg. 


 


Turkish Get Ups - Two sets from each side with a 16 kg KB, three sets from each side with a 20 kg KB.   TGU's are 16 - 20 - 20 - 20 - 16.  Felt really strong today 


 


Simple and Sinister stretches.


 


5.  Super Mario Assassin All-Stars: LEVEL 1 Team Pink



 

Too bad kettlebell swings don't count as jumps :)


 


I'm going to slowly get the 100 jumps in for the week.  Jumping does use a lot of the same muscles as my KB swings and since this is not a "do as many as you possibly can and die trying" type challenge, I'll take my time getting them done :)


 


I changed my Avatar for this challenge to support my team :)


 


A nice start to what's shaping up to be a fun and productive challenge.


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Why change a winning tactic? ... 

 

Good question, and you are, of course, correct.

 

After thinking about it, a lot, I won't be participating in the study and will stick with my S&S routine :) 

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We went to my monthly tune up visit with my Transplant Team this morning, and I did much better with my Pulmonary Function Tests (PFT's) than expected.  My infected tooth has been dragging me down just a bit, and my at home testing has been flat and just a tad low for the past week.  That was reflected in my FEV1 (the amount of air I can breath out in the first second of a forced breath) as it was down, but only by 1%.  Last month it was 110% normal, today 109%.  A reduction of only .1 liter.  Now for the awesome news.  My FVC (the amount of air I can breath out in a forced breath, basically my lung capacity) was...  wait for it...

 

104%  These new lungs are awesome :)

 

As to the infected tooth, the Team would prefer that I just have it extracted and leave it at that.  That is the path with the least risk for future infection.  That's pretty much what I thought they would say.

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Cool new avvy, it reminds me of By Crom...so great.

 

What are the percentages for your lung capacity based off of, that is it's 109% of what? Inquiring minds and all that...

 

Ah, infected tooth. I don't suppose you're going with the doorknob method, are ya?

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Cool new avvy, it reminds me of By Crom...so great.

 

What are the percentages for your lung capacity based off of, that is it's 109% of what? Inquiring minds and all that...

 

Ah, infected tooth. I don't suppose you're going with the doorknob method, are ya?

 

I'm going to have to spend some time perusing 'By Crom" :)

 

The percentages in the PFT's refer to % of expected volume.  They come up with the numbers via a calculation that includes the volume of air in liters, gender, age, race, height and weight.  Today I blew 5.69 liters for my FVC.   Last October, two months before my transplant, I blew less than 2.5 liters.

 

I've done similar to the doorknob with baby teeth before, but not this time.  Older and wiser and all that stuff :)

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It's a major evening-killer, that site, watch out! It'll be 10 before you know it.

 

Ah, I see. Ouch, I cannot imagine how that felt back then. You're in such a better place now.

 

Just had to ask, lol....

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Monday Macros

Weight = 157. Weight gain this week = 1 lbs. Total weight loss = 94 lbs. Macros for the week = Carb/Fat/Prot - 20/55/25%. Daily avg cals = 2443.  Body Fat = 13.1%.

 

Macros and cals were spot on this week.  

 

It's a major evening-killer, that site, watch out! It'll be 10 before you know it.

 

Ah, I see. Ouch, I cannot imagine how that felt back then. You're in such a better place now.

 

Just had to ask, lol....

 

Ask away.  I like answering questions about the disease I had (Idiopathic Pulmonary Fibrosis) and my transplant.  You would be surprised at how many of us there are, maybe a friend or relative of an IPF patient will see one of my posts and learn a bit about what their family member/friend is going through.

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Good work keeping carbs so low, we're calorie goal twins, lol. 

 

You and your family, the doctors, and donor's family are so amazing, just the very idea that we can do such life-saving things for people with your situation--I suppose you were on a trajectory for organ failure?--the human body is one giant miracle, even on the days where it feels like it's betrayed you.

 

How did you get diagnosed and how long do you believe you were battling IPF--before and after the formal diagnosis? It seems like just the kind of thing that would sneak up on you... 

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Week 1 - Day 1. The Beginning

 

1.  Pull my own Weight:

 

I ordered a set of Rogue Fitness Pull Up Assistance bands.  When they arrive I'll figure test out my max set with the heavies band then use a "Grease the Groove" approach to using the bands to program the movement.  I'll also be Scapular Pulls to a Hollow Body dead hang and reverse pull ups 3 days/week. 

 

2.  Keep Calm and Carry On: An Assassin must be able to control his thoughts and breath. 

 

7.9 minutes of Seven Second Box Breathing.

 

3.  Learn a New Skill:

 

0/3  

 

4.  A Barbarian’s Got to do What a Barbarian’s Got to do:

 

Prying Goblet Squat - One set of 5 with a 16 kg kettlebell.

 

Hip Bridges- One set of 5 Three Second Hip Bridges

 

Halo - One set of 5, in each direction, with a 16 kg kettlebell.

 

Kettlebell Swings - Four sets of 10, one handed, each hand, with a 20 kg kettlebell. and one set of 10, one handed, each hand, with a 24 kg kettlebell.  Today I've officially started my progression to the heavier KB :)  My sessions are 20 - 24 - 20 -20 - 20 kg. 

 

Turkish Get Ups - Two sets from each side with a 16 kg KB, three sets from each side with a 20 kg KB.   TGU's are 16 - 20 - 20 - 20 - 16.  Felt really strong today 

 

Simple and Sinister stretches.

 

5.  Super Mario Assassin All-Stars: LEVEL 1 Team Pink

 

Too bad kettlebell swings don't count as jumps :)

 

I'm going to slowly get the 100 jumps in for the week.  Jumping does use a lot of the same muscles as my KB swings and since this is not a "do as many as you possibly can and die trying" type challenge, I'll take my time getting them done :)

 

I changed my Avatar for this challenge to support my team :)

 

A nice start to what's shaping up to be a fun and productive challenge.

 

Great workout. I have the same approach to my jumps. I also figured doing them in small numbers would be a good practice forthe swing movement, since they are very similar movement patterns.

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Good work keeping carbs so low, we're calorie goal twins, lol. 

 

You and your family, the doctors, and donor's family are so amazing, just the very idea that we can do such life-saving things for people with your situation--I suppose you were on a trajectory for organ failure?--the human body is one giant miracle, even on the days where it feels like it's betrayed you.

 

How did you get diagnosed and how long do you believe you were battling IPF--before and after the formal diagnosis? It seems like just the kind of thing that would sneak up on you... 

 

The way I usually describe the progression of IPF is that at some time in my life my lungs were damaged.  The initial cause of the damage is unknown, hence the "Idiopathic" part of IPF.  Once damaged, my lungs reacted by creating a scar over the damage.  That's what your body is supposed to do when damaged.  The only problem is that my body never turned off the "create scar" switch.  The scar tissue continued to progress until my lungs started getting thicker and shrinking.  They were basically turning into raisins.  They were small, stiff and thick.  Not only was the amount of air I could get into my lungs reduced, the amount of oxygen I could get out of that air was also reduced.  Without a transplant I would not have survived another infection like a cold or flu.

 

 If the damage were known then it would still be Fibrosis, but identifies as something like Asbestosis, or Hypersensitivity Pneumonitis (lungs react to things like bird droppings),  Occupational related PF, PF from radiation treatments or chemo and the like.  More here.  If the cause of the fibrosis can be identified, there may be a good treatment for the disease.  Two drugs were approved for clinical use last year that do slow the progress of IPF.  Note the word 'slow'.  The only known cure for IPF is transplant.

 

Now for my journey with this disease.  I'll put it behind a spoiler as this may get long :)

 

In 1999 I lived in Colorado on the Front Range outside of Denver.  I was having some problems when I went up to the higher altitudes, and I could feel that there was something going on with my right lung.  I was starting to feel each breath.   I told my doctor during a routine physical, he had a chest X-Ray taken, and found some haze in my lower lobes.  He said that I should go see a Pulmonologist.  I was getting ready to move to Texas to be with my Sweetie (:)) decided to put that off until after the move.  I found a job, moved to Texas, and got busy with life.  I saw a new Dr. for a physical, and mentioned what the previous doctor mentioned.  She ordered a CT Scan with Contrast.  The scan showed there were some issues, so she referred me to my Pulmo.  He also ordered a CT Scan with Contrast.  This was in 2002.  That scan, and a follow up in 2003 indicated that I had a mild interstitial lung disease, pulmonary fibrosis.  We kind of assumed it was due to a large asbestos exposure I encountered while in the Navy.  IN 2002 my FVC (see earlier post) was 82% of normal.  My Pulmo said that "You are a young man, you are going to live forever"

 

The scarring progressed over the years, and my lung capacity dropped with each visit to the pulmo.  He didn't seem very concerned until my Dad passed in 2011, from IPF.  We kind of assumed that my Dad's disease was caused by exposure to Gypsum dust when he worked in a Gypsum plant.  I now know we were wrong.

 

In Sept of 2011 my FVC was 64%.  My Dr. still was not too concerned.  I was starting to get concerned.

 

In June of 2013 my FVC was 47%.  Doctor started getting concerned and we decided to get a lung biopsy.  Pre-biopsy, he ordered another CT Scan with Contrast.  The insurance company denied it.  I was kind of pissed, but guess what...  scans with contrast are not the correct test for diagnosing and monitoring PF.  The proper test is a High Resolution CT.  My Dr. had been ordering the wrong tests all these years.  That's when I started my IPF study quest.  I joined several medical associations (had to join to read all the medical journal studies and papers) and read pretty much everything on the subject written in the last 20 years.  

 

The HRCT indicated "Extensive ground glass opacity and subpleural fibrosis with traction bronchlectasis and early honeycombing.  The findings are indicative of idiopathic pulmonary fibrosis."

 

My Dad had a VATS biopsy, and never really recovered.  So my Mom was very resistant to my having the procedure.  In my studies I learned that Dad was not a candidate for the procedure and never should have undergone it.  His age and heart problems made the procedure totally unnecessary.  Any information gleaned from the lung tissue would not have resulted in any treatment that would have extended Dads life or even quality of life.

 

My case was different.  I was young enough to handle the procedure well, no heart issues, and needed a good diagnosis to get into any clinical trials.

 

I had the VATS lung biopsy in August of 2013.

 

The biopsy confirmed the HRCT and my Dr. recommended that I go to UTSW and see the lung specialist there.  I went to UTSW several years late.  Most good clinical trials for IPF require an FVC of at least 50% or greater, many at 55%.

 

The fibrosis started spreading faster and I went on supplemental oxygen on Christmas Day, 2013.  I could have started a few weeks earlier, but I joined a trial put on by National Jewish in Denver that studied the effects of supplemental oxygen use for IPF patients.  They needed good reference data before I started using O2.

 

I went to the UTSW Lung Transplant clinic in April or May of 2014.  They said that I should already be on the list.  Only problem was that I didn't qualify.  I was too fat.  I had to lose weight before I could undergo the preliminary testing to see if I were a good candidate for the transplant.  There are not very many lungs to go around, so it does make sense to allocate those lungs to those with the most chance of success. 

 

That's when I started following the Primal Blueprint and my MDA journal listed in my sig line.  

 

As the year went on, I lost weight and my need for supplemental oxygen increased.  Sitting in a chair for awhile I could get away with 4 or 5 liters per minute.  Slow walking 6 lpm.  Walking for exercise 10 lpm.  I had to buy my own regulator to try and walk my neighborhood and had to use a little more than 10 lpm.  That made for a quick walk.

 

I was still working at this time, my company was very supportive and allowed me to work up until the day I was transplanted.  My desk was up one set of stairs and the office ladies learned to not ask me anything that needed an intelligible response for at least 5 or 10 minutes after I got up the stairs.  My guys would bring extra O2 bottles up for me and I had a golf cart to get around the warehouse.

 

I lost the weight and went through the week long, very intensive, transplant qualification exams in October.  I passed and was placed on the list.  In November we received 'The Call" at about 2:30 AM.  Off to the hospital, get all prepped, hang out for quite a few hours, and then find out that the lungs were not suitable.  They had some pneumonia.  

 

We got the call again on New Years Eve.  Went to the hospital, got prepped, waited for hours, and the last thing I remember is the Dr. coming into the OR and saying "OK, knock him out, it's time go get started".

 

The rest is history :)

 

I did have one acute rejection episode in Feb.  I caught a minor virus, a Coronavirus.  That's something that most people get over quickly, often not even knowing they had it.  For me I ended up a week in the hospital getting breathing treatments that were 6 hours of treatment and 2 hours off.  The meds were so bad that people couldn't come into the room without respirators and goggles, no visitors.  I was warned that I should keep all electronics in a zip lock bag during the treatments.  It was a pain, but it did stop the rejection event.  Only problem is that it did not kill the virus.  I still have it in my sinuses.  They've tried several experimental approaches to get rid of it, but no luck.  So long as it stays in my sinuses and my body doesn't decide to go back into attack mode, I should be good to go.

 

I'm doing my own little N-1 experiment to deal with it :)

 

Well, that's pretty much it.  

 

The family that so graciously donated my lungs are in my thoughts every single day.  

 

My MDA journal covers more of the day to day life with IPF and post transplant if you are interested.

 

The transplant journey starts on Page 36

 

Great workout. I have the same approach to my jumps. I also figured doing them in small numbers would be a good practice forthe swing movement, since they are very similar movement patterns.

 

I did some broad jumps, and the movement is very similar.  I need to work on a softer landing though as jolting my chest is not the best of ideas.  I'm still restricted from jumping on a trampoline with my granddaughter, but static jumps should be ok :)

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Week 1 - Day 2.  I Love That New Challenge Smell.

 

1.  Pull my own Weight:

 

Today I did two 10 second negative pull ups and three scapular pulls.

 

2.  Keep Calm and Carry On: An Assassin must be able to control his thoughts and breath. 

 

7 minutes of Seven Second Box Breathing.

 

3.  Learn a New Skill:

 

0/3  

 

4.  A Barbarian’s Got to do What a Barbarian’s Got to do:

 

Prying Goblet Squat - One set of 5 with a 16 kg kettlebell.

 

Hip Bridges- One set of 5 Three Second Hip Bridges

 

Halo - One set of 5, in each direction, with a 16 kg kettlebell.

 

Kettlebell Swings - Four sets of 10, one handed, each hand, with a 20 kg kettlebell. and one set of 10, one handed, each hand, with a 24 kg kettlebell.  

 

Turkish Get Ups - Two sets from each side with a 16 kg KB, three sets from each side with a 20 kg KB.   

 

Simple and Sinister stretches.

 

5.  Super Mario Assassin All-Stars: LEVEL 1 Team Pink

 

I tried broad jumps, they hurt my incision site.  Then I tried box jumps... ouch.  Squat jumps and jumping lunges don't hurt my chest near as much, my knees are better shock absorbers in those movements.  

 

I think I'm going to forgo the jumps and do the cooking portion of this mini challenge.

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5.  Super Mario Assassin All-Stars: LEVEL 1 Team Pink

 

I tried broad jumps, they hurt my incision site.  Then I tried box jumps... ouch.  Squat jumps and jumping lunges don't hurt my chest near as much, my knees are better shock absorbers in those movements.  

 

I think I'm going to forgo the jumps and do the cooking portion of this mini challenge.

 

 

You get points for trying in my book, it's more than I did. I looked at the mini challenge, saw jumping and thought "Nah, I'll pass"

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You're doing great on your challenge so far! I haven't tried any of the other jumps, I just did the squat jumps since I knew I could do that. I have thought about trying the broad jumps though, they look kinda fun. Let us know what you cook, I'm looking forward to finding some new veggie recipes.

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A great start to the challenge, and congrats on those test results! I've been fortunate to not have to deal with any kind of transplants in my life or amongst my family, but I believe very strongly that it's my duty to be a donor if anything bad ever happens to me, and it makes me feel good about my decision seeing how someone like you is benefiting from someone else making that same decision.

 

Question for you re: bone broth, since it was you suggestion to me in the last challenge. I have a goal to track my calorie intake on MFP, and when I look up bone broth on there, there's a huge discrepancy between the values put in by other users. I wonder if you have any insight regarding that. For the record, I made it with beef bones, and took off as much of the fat as I could when it was cool.

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Must be nice to have numbers to validate what you're doing :) so glad everything is going well and while your story is always in the back of my mind when reading your thread, re-reading about it does still manage to leave me in awe.

Keep on keeping on! I think you're doing that family proud with how well you're treating your new lungs :)

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You get points for trying in my book, it's more than I did. I looked at the mini challenge, saw jumping and thought "Nah, I'll pass"

 

Thanks.

 

Do you think it's a coincidence that the cooking option is squash, when the end goal of Mario jumping is to squash things?

 

 

You're doing great on your challenge so far! I haven't tried any of the other jumps, I just did the squat jumps since I knew I could do that. I have thought about trying the broad jumps though, they look kinda fun. Let us know what you cook, I'm looking forward to finding some new veggie recipes.

 

I was able to jump further than I thought I would, and they felt great until the landing :)  I'll be cleared by the Team to do jumping on a trampoline and (something on my bucket list) fly boarding next year.  I'll give static jumps a shot again then.

 

A great start to the challenge, and congrats on those test results! I've been fortunate to not have to deal with any kind of transplants in my life or amongst my family, but I believe very strongly that it's my duty to be a donor if anything bad ever happens to me, and it makes me feel good about my decision seeing how someone like you is benefiting from someone else making that same decision.

 

Question for you re: bone broth, since it was you suggestion to me in the last challenge. I have a goal to track my calorie intake on MFP, and when I look up bone broth on there, there's a huge discrepancy between the values put in by other users. I wonder if you have any insight regarding that. For the record, I made it with beef bones, and took off as much of the fat as I could when it was cool.

 

I use Homemade - Beef Bone Broth - Barb and Organic - Chicken Bone Broth - Homemade in MFP.  They seem close.  

 

Must be nice to have numbers to validate what you're doing :) so glad everything is going well and while your story is always in the back of my mind when reading your thread, re-reading about it does still manage to leave me in awe.

Keep on keeping on! I think you're doing that family proud with how well you're treating your new lungs :)

 

Thanks.  Being a data hound (hoarder?) has advantages :)

 

Off to Day 3, have a great one everyone!

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Late to the party, but it looks like you've got another solid challenge here!

 

As to the twenty-pullups progression, I think you made the right decision. I was one of those who tried it and I believe it asks for too much, too quickly. I think the route you are going, with resistance band assistance and eventually weighted pullups makes more sense based on my personal experience and my somewhat limited research.

 

And climbing! Really glad you enjoyed it last challenge and looking forward to hearing about the next trips.

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You're amazing, and I wish you all the luck in getting rid of that stupid virus and many years free and clear of anything that remotely doesn't jive with your transplant recovery.

 

Today was a really good day, sounds like! Yeah, jumps just may not be your thing--you're a trooper just for giving them all a try.  

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Week 1 - Day 3.  


 


1.  Pull my own Weight:


 


1/3


 


2.  Keep Calm and Carry On: An Assassin must be able to control his thoughts and breath. 


 


9.3 minutes of Seven Second Box Breathing.


 


3.  Learn a New Skill:


 


0/3  


 


4.  A Barbarian’s Got to do What a Barbarian’s Got to do:


 


Prying Goblet Squat - One set of 5 with a 16 kg kettlebell.


 


Hip Bridges- One set of 5 Three Second Hip Bridges


 


Halo - One set of 5, in each direction, with a 16 kg kettlebell.


 


Kettlebell Swings - Four sets of 10, one handed, each hand, with a 20 kg kettlebell. and one set of 10, one handed, each hand, with a 24 kg kettlebell.  It took a little longer to get my swings in today, and the humidity is back up.  Coincidence?


 


Turkish Get Ups - Two sets from each side with a 16 kg KB, three sets from each side with a 20 kg KB.   


 


Simple and Sinister stretches.


 


5.  Super Mario Assassin All-Stars: LEVEL 1 Team Pink


 


I found my recipe.  Acorn Squash - its what's for breakfast :)


 


I'll make it either Friday or Saturday morning and post images then.


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It hardly ever gets humid here, so when it does I think I might die. My hand gets all sweaty and I can't grip, and swinging a KB turns into a sort of medieval torture session for me.

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I haven't been paying attention to humidity, but I have noticed that sometimes it seems like my hands are sweatier and I have more trouble with the swings.

 

I'm looking forward to hearing about your recipe!

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Week 1 - Day 4.  


 


1.  Pull my own Weight:


 


My new resistance bands arrived today :)  I hooked up the Green  65 lb band and was almost able to get in two good pull-up. The second one was to my chin, but not further.


 


I take my meds 6 times/day, one time is while in bed so 5 times while up and about.  I plan on greasing the groove by doing 1 pull-up with the green band each time I take my meds (if at home) and retest again next Thursday.


 


2.  Keep Calm and Carry On: An Assassin must be able to control his thoughts and breath. 


 


7.9 minutes of Seven Second Box Breathing.


 


I started a guided meditation, but an ad popped up a couple minutes in and stopped the audio.  When I got rid of the ad it had reset the audio to the beginning, so I went back to my box breathing.


 


3.  Learn a New Skill:


 


0/3  


 


4.  A Barbarian’s Got to do What a Barbarian’s Got to do:


 


Rest day.


 


5.  Super Mario Assassin All-Stars: LEVEL 1 Team Pink


 


Picked up an Acorn Squash today and plan on using it for breakfast tomorrow.


 


Happy Thursday everyone!


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